‘SHE IS STRONG’ Sister Wives star Maddie Brown gives fans update on 3-year-old daughter Evie’s health struggles and shares rare new pic
SISTER Wives star Maddie Brown has given her fans an update on her daughter Evie’s health struggles as she shares a rare photo of the three-year-old.
Recently, the TLC star posted a heartfelt video of Evie riding a scooter just two years after the little one received her prosthetic leg.
Last week, Maddie, 27, took to her Instagram to share the new photo of her daughter along with an update on her well-being.
The sweet snapshot showed a smiling Evie wearing a light blue dress with her hair pulled up into a high ponytail as sat on the front porch of their home.
The three-year-old was shown wearing her most recent leg prosthetic as the older prosthetics she’s outgrown were lined up in a row beside her.
Maddie captioned the post: “What is FATCO? FATCO is Fibular Aplasia- Tibial campomelia- Olygidactly syndrome. It’s basically a bunch of Greek for a collection of ‘findings.'”
The Sister Wives star continued: “Since Evie’s diagnosis, I have learned it is also sometimes called Hecht Scott Syndrome. There is no known causation of this syndrome.
The reality TV star explained: “This syndrome looks like shortened legs, missing digits in toes and fingers, and sometimes shortening of arms. Evie has 3 of 4 limbs affected, leaving her right leg unaffected.”
She then added that “This doesn’t stop her. It does not slow her down or make her notice anything.
“Evie is not clueless to her syndrome, but it is not a hindrance. She knows she looks a little different, and she is completely confident in it! I hope that it ALWAYS stays that way.”
The TV personality continued: “So, I will continue showing, normalizing, and sharing so that if you ever see Evie one day, or someone that looks like her, you don’t stare, hush your kids, or ignore her in hopes not to make it weird.”
In conclusion, Maddie wrote: “I hope you ask her questions, greet her, smile, and go about your day as she will go about hers. She is strong and capable and I hope you see that.”
UNSTOPPABLE
As mentioned, Maddie previously gave a sweet update about Evie on Instagram as she played in the spring weather on her scooter outside.
The song Unstoppable by Sia was Maddie’s appropriate song of choice as fans watched Evie have fun.
In a following Instagram Story, Maddie showed off Evie smiling big with sunglasses on while at the dentist.
“Straight chillin,'” the caption wrote along with an emoji.
Just two years ago, the star’s daughter got her foot amputated and her hand “clipped” due to a rare genetic disorder.
Months later, the now-3-year-old went to receive molding done for her new prosthetic.
‘BIG DAY!’
In 2020, Maddie shared a Boomerang gif on Instagram of herself holding her daughter as the prosthetist worked on getting her fit for the artificial limb.
She captioned the post: “Big day for Miss Evie! First molding for her prosthetic!”
They didn’t get to go home with a prosthetic the same day as the molding, as Maddie explained that there are multiple stages to the process and it might be a while until it’s complete.
The mother-of-three, who also shares son Axel, five, and newborn daughter Josephine Lee Brush with husband Caleb Brush, told Instagram followers: “Evie was molded for a socket… Markings [were made] to show where the special points are. Where it needs to be molded specially for her socket.
“So, then he’s going to mold a clear socket and we go back and he fits her with the clear socket so he can see what it looks like. Does she need extra room here? Is this spot too tight?
“And then when he’s fixed the clear socket and it looks good in a clear socket, he will then make a prosthetic.”
Maddie added that she plans to continue to share updates because it’s all a “learning process” for her and her husband but they want to bring awareness “for the purpose of normalization.”
Maddie’s dramatic delivery, when she gave birth to her daughter, was captured in a previous season finale of Sister Wives.
Maddie shared a picture on Instagram as she held up Evie in their hospital room after her life-changing procedure.